Monday, August 26, 2013

SSI Appointments for children With Disabilities..... Bah Humbug I say you!!

When it comes to things being just plan out not wanted, I put 3 Hrs worth of talking with an MD and a PHD about my son at the top. Mind you they have all his medical, and school records anyway. I first got the letter about the appointments a week or so ago, I contact the contact person about said appointment and what I need to take, be prepared for.Lets call said person Kyle, I like that name. Anyway so I call Kyle and get straight threw. Connected right to his office and he ANSWERS, that is amazing, but OK. I ask Kyle my question and he say " it is just a Physical, and the PHD is going to do something called the Denver test" Now mind you G has had the Peabody 4 times and each time he was dx with DD (developmental delay). I relay this info to Kyle, he states he has not seen this and request info from school... the school WAS on the app in the first place, bless his heart anyway. Well anyway. I prepared for today like a crazy woman I think. One I have been told when meeting a new doc, witch we do quite often to always look nice the first visit. So I paint my nails, wear a skirt, and blouse, even put make up on. I bring snacks. drinks, Papers, papers, and more papers, I also bring toys Kindle Fire. You know just to be prepared. I get there and the doc is wearing a tank top and black capries...lol,  I felt over dressed. We go in and do the apt witch I thought was going to be them checking out G, Nope no checking out involved. She asked me questions made copies of the papers i had, and said thank you. Though she did not take lightly to G's fondness of light switch's... that was fun. OK I guess. Then in comes the PHD, She has him stack blocks, feed a baby, kick a ball. G can do these things, Then she sits down with me and as questions. First she says how good I am doing with him being on my own (pat on the back). Then she watch's him play, Scream at nothing in particular kick her throw him self on the floor... She says I see why day cares do not want him. She also said she could refer me to a lot of help but it is mostly all in Omaha, and it still would not be child care because the only one she can think of that would take a medically fragile, child with behaviors has a 2 year waiting list. By then G would be in school, and I could go back to work anyway... ugg. Why can't things just be easy. Why couldn't people have listioned to me when he was little so we could have had help by now with out being Behind on everything. I am mad, upset, and am really feeling bad for relying on family the way I do. I just wish this was easier. Or that S (G's sperm donor) Would help out a little more. Like stop quieting his job all the time so can at lest get the messley Child Support he is ordered. The PHD did say that, he should SHOULD quilfy but it is up to the guy in the office Kyle, and if we are denied to appeal because sometimes that is all the want you to do, show that you are willing to fight for it. I really hope things start to get better around here, I don't think things could get any worse any how. Well thanks for reading God Bless...
 

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