Family is supposed to be the strongest bond.

You know growing up you siblings are your best friend. My little sister really "was" my best friend up until three years ago. As adults even we spent weekends together and talked on the phone everyday. I also have an older sister, and not for lack of trying I have never built a relation ship with her. I can not say as to why, I try all the time, invites to dinner, asking to get kids together to play, or just calling to talk. But it still just has never worked it seems all one ended. The three of us are all we have though, our mother the only tie between us is gone, she tragicly passed in June of 2000. People say in the wake of tragidy bonds are built, and that may have been true to my little sister and I, but not with our older sister.

SSI Appointments for children With Disabilities..... Bah Humbug I say you!!

When it comes to things being just plan out not wanted, I put 3 Hrs worth of talking with an MD and a PHD about my son at the top. Mind you they have all his medical, and school records anyway. I first got the letter about the appointments a week or so ago, I contact the contact person about said appointment and what I need to take, be prepared for.Lets call said person Kyle, I like that name. Anyway so I call Kyle and get straight threw. Connected right to his office and he ANSWERS, that is amazing, but OK. I ask Kyle my question and he say " it is just a Physical, and the PHD is going to do something called the Denver test" Now mind you G has had the Peabody 4 times and each time he was dx with DD (developmental delay). I relay this info to Kyle, he states he has not seen this and request info from school... the school WAS on the app in the first place, bless his heart anyway. Well anyway. I prepared for today like a crazy woman I think. One I have been told when meeting a new doc, witch we do quite often to always look nice the first visit. So I paint my nails, wear a skirt, and blouse, even put make up on. I bring snacks. drinks, Papers, papers, and more papers, I also bring toys Kindle Fire. You know just to be prepared. I get there and the doc is wearing a tank top and black capries...lol,  I felt over dressed. We go in and do the apt witch I thought was going to be them checking out G, Nope no checking out involved. She asked me questions made copies of the papers i had, and said thank you. Though she did not take lightly to G's fondness of light switch's... that was fun. OK I guess. Then in comes the PHD, She has him stack blocks, feed a baby, kick a ball. G can do these things, Then she sits down with me and as questions. First she says how good I am doing with him being on my own (pat on the back). Then she watch's him play, Scream at nothing in particular kick her throw him self on the floor... She says I see why day cares do not want him. She also said she could refer me to a lot of help but it is mostly all in Omaha, and it still would not be child care because the only one she can think of that would take a medically fragile, child with behaviors has a 2 year waiting list. By then G would be in school, and I could go back to work anyway... ugg. Why can't things just be easy. Why couldn't people have listioned to me when he was little so we could have had help by now with out being Behind on everything. I am mad, upset, and am really feeling bad for relying on family the way I do. I just wish this was easier. Or that S (G's sperm donor) Would help out a little more. Like stop quieting his job all the time so can at lest get the messley Child Support he is ordered. The PHD did say that, he should SHOULD quilfy but it is up to the guy in the office Kyle, and if we are denied to appeal because sometimes that is all the want you to do, show that you are willing to fight for it. I really hope things start to get better around here, I don't think things could get any worse any how. Well thanks for reading God Bless...
 

Earth Day!

I do not know if celebrating the Earth just one day a year is enough. I do however firmly believe that there are some out there who have no clue, what all their diapers, and water bottles are doing to the earth or sea life. I as a mother have two very green little boys. They both know that human milk is for human babies, that cloth diapers are best, and making your own is better than buying.
Earth day was created by a sadistic man, who murdered his girl friend. With that said it really had nothing to do with the day it's self. If in fact people where teaching about preserving the earth, and reduce, reuse, recycle it wouldn't be so bad.
Today I saw numerous, adds, posters, flyers, and pamphlets, all to address one day that will wind up in the trash, isn't that a bit redundant. Maybe hand out water bottles with info on them, or reuseable shopping bags, not more trash!

15q11.2 Micro Deletion!

My Youngest son G, recently had genetic testing done. The results came back that he has 15q11.2 Microdeletion. This is a tiny part of the 15th chromosome. So here is a run down. When an embryo is formed the sperm and egg come together each with their half of the 24 chromosome's to make 24 pairs of chromosomes. Sometimes this is not the case. There are many many variations to the genetic sequence that can cause an abundant amount of problems. The deletion G has is part of the 15th chromosome. The 11.2 part to be exact. G's deletion is part of the gene that cause's Angleman syndrome. This deletion is so rare that the only information they have, is a compiled list of the 50 our so people documented with the deletion. It reads something like this 8 year old male, ADHD. 12 year old female mental ability of A 4 year old. The list goes on and on like that in a horribly frustrating way. When you google 15q11.2 micro deletion the words schizophrenia, autism, ADHD, OCD, pop up, all of this just opens new doors, and doesn't answer any of the questions we had that led to the testing to begin with. I as a mother am totally lost, and do not know what to do next. 

April Fools!

So apparently the big thing is to say you are prago on April fools if you are a girl/woman. I don't believe this is a good idea for many, MANY reasons. One is the heart attack you will give family and friends, two what about all of those friends married, waiting, spending thousands of dollars  and taking their temp every morning to get pregnant. Or worse yet the friend that just lost a pregnancy  or child. You are joking about having a child as they morn theirs. It is heartless and just wrong. Sorry for my rant. Next time you should just think about who might see the post, or better yet just play the joke on people you see, so you can keep the tender hearts of those who do not find pregnancy a joke safe.